Patient Story: Taylor Coffman
Taylor Coffman is an actor, writer, podcast-maker, and mother with pregnancy-triggered atypical hemolytic uremic syndrome (aHUS). As a performer, she...
The aHUS Foundation
fosters sharing of information—and inspiration–for anyone looking to gain insight into atypical hemolytic uremic syndrome (aHUS). We connect people with the resources and opportunities they need to help improve the lives of those dealing with this rare and complex disease.
We’ve Been There.
We’ve spent the evenings in hospitals, worrying and bracing ourselves for the worst. We’ve become students of the invisible processes in our bodies. We’ve felt the physical relief of meeting others in our situation. Their optimism, wisdom, and encouragement have carried us through.
So, we do the same for others who are now where we’ve been. We advocate in medical and pharmaceutical circles. We help doctors understand and respond to our disorder. We champion continued investment in research and therapies that improve the quality of life for every aHUS patient.
Atypical support.
Simply put, it’s in our blood.
Approximately One Third of all aHUS patients have none of the known genetic mutations.
It’s easy to feel lost on the aHUS journey, until you find others who’ve gone through it too.
Your contributions fund vital research, create educational materials, and enable us to host free family conferences, where aHUS patients and caregivers can connect for the first time.
When you support the aHUS Foundation you make an impact on aHUS patients’ lives! Even a small donation now will help us advance knowledge, provide resources, and foster a sense of community among those affected by aHUS long into the future.
Please consider getting involved with our cause.
Latest News
Patient Story: Lucy
Lucy was born completely healthy, but at 5 months old went to the ER for dehydration during what seemed like...