Discover a World of Knowledge and Support at aHUS Conferences!

Join us at an upcoming aHUS conference, where experts, patients, and caregivers come together to share insights, experiences, and the latest advancements in atypical hemolytic uremic syndrome (aHUS) research and treatment.

The hands of a doctor holding those of a patient in support of the patient

Opportunities

These conferences are a unique opportunity to:

  • Learn from leading experts in the field of aHUS.
  • Connect with fellow patients and caregivers who understand your journey.
  • Stay updated on groundbreaking research and therapies.
  • Find hope, support, and inspiration in our vibrant community

Join Our Community

Don’t miss out on this invaluable chance to expand your knowledge, connect with others, and make a positive impact in the aHUS community. Check out our conference schedule and mark your calendar to be part of these transformative events.

Upcoming Conferences

Fall 2026

September 24 – 27, 2026

Lake Buena Vista, Florida

Registration is now open for our 2026 aHUS Foundation Family Conference.

Register Here for Lake Buena Vista aHUS Conference

Why You Should Join Us in Florida?

Join the aHUS Foundation for the 2026 aHUS Family Conference at the beautiful Drury Plaza Hotel Orlando – Disney Springs Area, an Official Walt Disney World Hotel with transportation to all Disney parks and attractions. From Thursday evening, September 24 through Saturday evening, September 26, families affected by aHUS will come together for a weekend filled with education, support, friendship, and fun. Attendees will have the opportunity to learn from leading physicians and experts, participate in interactive sessions and discussions, and connect with other patients and caregivers who truly understand the challenges of living with aHUS.

In addition to informative sessions and community-building activities, attendees will enjoy time together in the heart of the Orlando and Disney Springs area. As we did in 2024, the Foundation will once again cover Sunday night’s hotel stay for guests who would like to extend their visit and enjoy the many Orlando-area attractions. The registration fee is $100 for guests ages 18 and older. As always, once onsite, the Foundation covers hotel accommodations, meals, conference activities, and scheduled events throughout the weekend. We look forward to welcoming both new and returning families to another memorable aHUS Foundation conference weekend.

People in a conference setting

Past Conferences

2025

Denver, CO

2024

Walt Disney World, Orlando, FL

May 2023

Baltimore, MD

2020-2022

None (due to COVID concerns)

2019

Charleston, SC

2018

Boston, MA; Iowa City, IA; Nashville, TN; Phoenix, AZ; and Disney World, FL

2017

Baltimore, MD; San Antonio, TX; Seattle, WA; and Disneyland, CA

2016

Denver, CO; Iowa City, IA; and Nashville, TN

A person presenting in a conference setting