Sharing the Expertise: Doc to Doc Directory

Physicians wishing to connect with other doctors experienced with the complexities, multiple issues, and multiple presentations of atypical hemolytic uremic syndrome (aHUS) are encouraged to contact these volunteer physicians.

Patients, parents, and caregivers can share these physician contacts with their care teams by emailing this directory page. Your care team can then reach out to these volunteer physicians regarding aHUS diagnosis, treatment, and disease management.

Physicans listed here keep busy schedules, so please respect that time limitations will not allow them to take individual patient phone calls or to answer patient emails. This directory is intended for physician-to-physician contact only.

Gianluigi Ardissino, MD, PhD

Center for HUS Control, Prevention and Management
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milano, Italia
Tel. +39.02.55032300
M: +39.335.6065755
Email: ardissino@centroseu.org
aHUS interests: Diagnosis and treatment of aHUS, individualization of patient treatment, management of pediatric patients, transplantation in aHUS

Chatchawin Assanasen, MD

Associate Professor and Medical Director
UT Health Science Center
SouthTexas Pediatric Blood and Cancer Ctr
Div. of Hematology/Oncology
Dept. of Pediatrics
UTHSCSA Office: (210) 743-2316
Fax: (201) 702-8012
Toll-free: 1-800-239-9769
Email: assanasen@uthscsa.edu
aHUS interests: Diagnosis and treatment of aHUS; participating member of Alexion’s Speaker’s Bureau as a physician expert

Patrick Brophy, MD

University of Iowa
Pediatric Nephrology, Dialysis & Transplantation
Office: (319) 384-3090
Fax: (319) 384-3050
U of Iowa Heath Care
(319) 356-7249
Iowa City, Iowa
Email: patrick-brophy@uiowa.edu
aHUS interests: Diagnosis and ongoing care of multiple patients, dialysis issues, and transplantation (renal transplant with Soliris)

Bradley P. Dixon, MD

Associate Professor of Pediatrics
Department of Nephrology
Children’s Hospital of Colorado
13123 E. 16th Avenue, Box 328
Aurora, CO 80045
Voice: (720) 777-6263
Fax: (720) 777-7200
E-mail: bradley.dixon@childrenscolorado.org
aHUS interests: Diagnosis and treatment of aHUS; guest speaker at aHUS Foundation Family Conferences

Stuart Goldstein, MD

University of Cincinnati College of Medicine
Division of Nephrology and Hypertension &
The Heart Institute
Director, Center for Acute Care Nephrology
Cincinnati Children’s Hospital Medical Center
3333 Burnet Avenue
MLC 7022
Cincinnati, Ohio 45229
Phone: 513-636-2209
Fax: 513-636-7407
E-mail: stuart.goldstein@cchmc.org
aHUS interests: Long-term (10yrs+) PD dialysis, hemodialysis, growth issues/growth hormone

Carrie Gordon, MD and Oliver Fremont, MD

Maine Medical Partners Pediatric Specialty Care (Nephrology)
Office: (207) 662-5522
Fax: (207) 662-5526
Portland, Maine
The Barbara Bush Children’s Hospital at Maine Medical Center
aHUS interests: Multiple aHUS patients, Soliris, dual organ transplant, TRALI incidence with plasmapheresis

Paul C. Grimm, MD

Stanford University School of Medicine,
Dept of Pediatric Nephrology
Lucile Packard Children’s Hospital
Medical Director, Pediatric Kidney Transplant Program
Office: (650) 723-7903
Fax: (650) 736-8423
Email: pgrimm@stanford.edu
aHUS interests: Kidney transplantation in very young or complex patients (both renal transplant with Soliris and combined kidney/liver transplants)

Joel Hernandez, MD

Pediatric Nephrology
Providence Kidney Care
105 West 8th Ave, Suite 7040
Spokane, Washington 99204
Office: (509) 340-0930
aHUS interests: Multiple aHUS patients, Soliris

Robert B. Kaplan, MD

Faculty of the Division of Hematology and Cellular Therapy
Medical Director, The Hemostasis-Thrombosis Laboratory
The Western Pennsylvania Hospital
The Western Pennsylvania Allegheny Health System
Pittsburg, PA 15224
Office: (412) 578-4355
Fax: (412) 578-4391
Email: rbkaplan@wpahs.org
aHUS interests: Adult aHUS patients, diagnosis and initial/long-term management, harnessing registry data to refine treatment strategies, translating complement research into optimization of clinical management, rescuing renal grafts in de novo renal thrombotic microangiopathy

Mathieu Lemaire, MSc, MDCM, PhD

Staff Nephrologist, The Hospital for Sick Children
Scientist-track Investigator, Cell Biology, Sick Kids Research Institute
Asst. Professor, Paediatrics, University of Toronto
Toronto, Canada
Office: (416) 813-7654 ext. 309419
Email: mathieu.lemaire@sickkids.ca
aHUS interests: Genetics, gene discovery, DGKE-associated aHUS, translational research

Christoph Licht, MD, FRCPC, FASN

Associate Professor of Paediatrics
Division of Nephrology
The Hospital for Sick Children
555 University Avenue
Toronto, ON, M5G 1X8, Canada
Tel. +1 416 813 7654 x2058
Fax: +1 416 813 6271
Email: Christoph.lict@sickkids.ca
aHUS interests: Research focused on complement-based renal diseases

Carla M. Nester, MD

University of Iowa
Pediatric Nephrology, Dialysis & Transplantation
Office: (319) 353-7335
Fax: (319) 384-9616
U of Iowa Heath Care
(319) 356-1616
Iowa City, Iowa
Email: carla-nester@uiowa.edu
aHUS interests: Diagnosis and ongoing care of both adult and pediatric patients, including the use of eculizumab and transplantation (renal transplant with Soliris)

Jeffrey M. Saland, MD, MSCR

Interim Chief of Nephrology, Assistant Professor of Pediatrics
Mount Sinai School of Medicine New York, NY 10029
Office: (212) 241-6187
Fax: (212) 426-1972
Email: jeff.saland@mssm.edu
aHUS interests: Recognition and initial management, single or combined liver/kidney transplants

Amita Sharma, MD

Clinical Director
Division of Pediatric Nephrology
Massachusetts General Hospital for Children
Office: (617) 726-2908
E-mail: asharma5@partners.org
aHUS interests: Transplant with Soliris

Yu-Min Shen, MD

Associate Professor
Division of Hematology/Oncology
Blood Disorders Clinic
Seay Biomedical Building, 2nd Floor
2201 Inwood Rd. Dallas, Texas 75390-8852
Clinic: 214-645-4673
www.utsouthwestern.org
aHUS interests: Transitioning from pediatric to adult care settings, long-term dialysis issues

Julius Sherwinter, MD

Dunwoody Pediatrics (Nephrology) and the Children’s Kidney Center
Office: (770) 394-2358
Atlanta, Georgia
Chief Pediatric Nephrology
Associate Clinical Professor
Children’s Healthcare of Atlanta
aHUS interests: Infants and Soliris

Andrew M. Siedlecki, MD

Brigham and Women’s Hospital, Harvard Medical School
Division of Renal Medicine, Transplant Section
Location: Harvard Institutes of Medicine
77 Avenue Louis Pasteur, HIM Rm. 568B
Boston, MA 02115
Phone: (314) 809-2879
Fax: (617) 582-6167
Email: asiedlecki@partners.org
aHUS interests: Diagnosis, presentation during pregnancy and bone-marrow transplantation, treatment and transplant implications; principal investigator of Boston aHUS registry

C. John Sperati, MD, MHS

Johns Hopkins University School of Medicine
Division of Nephrology
1830 E Monument St., Rm 416
Baltimore, MD 21205
Office: (410) 955-5268
Fax: (410) 367-2258
Email: jsperati@jhmi.edu
aHUS interests: Adult aHUS patients, diagnosis and treatment, novel diagnostics; Johns Hopkins principal investigator for the international aHUS registry (Alexion Pharmaceuticals)

Christie P Thomas, MD

Professor, Departments of Internal Medicine, Division of Nephrology.
Medical Director, Kidney Transplant Program
University of Iowa Carver College of Medicine
200 Hawkins Drive, SE419H GH
Iowa City, IA 52242
Tel: 319-356-4216
Fax: 319-3562381
Email: christie-thomas@uiowa.edu
aHUS interests: Adult aHUS patients, transplant concerns, nephrology and internal medicine issues

We deeply appreciate the generosity of the physicians above, who have graciously volunteered to share their aHUS expertise and experiences. We extend a warm welcome to all physicians or researchers with aHUS case experiences; doctors wishing to volunteer and add their contact information to this “Doc to Doc” registry may notify alyssa@ahus.org or info@ahus.org.