Discover a World of Knowledge and Support at aHUS Conferences!

Join us at an upcoming aHUS conference, where experts, patients, and caregivers come together to share insights, experiences, and the latest advancements in atypical hemolytic uremic syndrome (aHUS) research and treatment.

The hands of a doctor holding those of a patient in support of the patient

Opportunities

These conferences are a unique opportunity to:

  • Learn from leading experts in the field of aHUS.
  • Connect with fellow patients and caregivers who understand your journey.
  • Stay updated on groundbreaking research and therapies.
  • Find hope, support, and inspiration in our vibrant community

Join Our Community

Don’t miss out on this invaluable chance to expand your knowledge, connect with others, and make a positive impact in the aHUS community. Check out our conference schedule and mark your calendar to be part of these transformative events.

Upcoming Conferences

Fall 2025

September 25 – 28, 2025

Denver, CO

Registration is now open for our 2025 aHUS Foundation Family Conference.

Register Here for Denver aHUS Conference

Why You Should Join Us in Denver

The aHUS Family Conference isn’t just another weekend event — it’s a chance to connect, learn, and recharge with people who truly get what life with aHUS is like. Over four days, you’ll hear from top experts on genetics, PTSD, how changes in Washington may affect our patients, and new drugs in the pipeline. You’ll also have plenty of time to swap stories, share tips, and build real connections with other patients and caregivers. You’ll learn the latest about aHUS — whether you’re a brand-new patient or a seasoned veteran.

And this year, we’ve added some extra fun and relaxation to the mix! We’ll spend one evening at Topgolf — think friendly competition, great food, and lots of laughs. Plus, we’re offering two yoga sessions led by an experienced instructor, so you can start your mornings feeling calm and energized (no experience required). With a great mix of learning, socializing, and unwinding, this year’s conference might just be our best one yet.

People in a conference setting

Past Conferences

May 2 – 4, 2024

Walt Disney World, Orlando, FL

May 2023

Baltimore, MD

2020-2022

None (due to COVID concerns)

2019

Charleston, SC

2018

Boston, MA; Iowa City, IA; Nashville, TN; Phoenix, AZ; and Disney World, FL

2017

Baltimore, MD; San Antonio, TX; Seattle, WA; and Disneyland, CA

2016

Denver, CO; Iowa City, IA; and Nashville, TN

A person presenting in a conference setting